Whether you’re looking to understand more about your symptoms or you’ve been recently diagnosed with HCM, here are resources to help you learn more about HCM.
Sign up for more information
If you have questions about HCM, we want to help.
If you would like to learn more about HCM, sign up to receive these resources:
Get educational information, doctor discussion tips, and symptom-tracking support tools.
Discover organizations and associations that may be able to provide you with even more helpful information.
information about HCM:
CALL 1-866-4HCM-INFO
(866-442-6463) 8 AM to 8 PM, ET, Monday-Friday
Tools and Videos
Making an appointment to see your doctor?
Use these tools to help you have an informed discussion. You can create a customized guide online or download a guide that
you can customize when you print it.
Learn what questions to ask to help you
get the answers you’re looking for.
OR
Download a Guide (English)
Download a Guide (Spanish) 
Use this list to help monitor your symptoms and bring it with you to your next doctor appointment.
Create Your Own GuideOR
Download a Guide (English) Download a Guide (Spanish) See what happens inside the heart when a person has HCM.
Watch Video
Do you know your family’s heart health history?
Learn why it’s important from
Dr. Michael Ackerman, a cardiologist and geneticist.
Real Patients
Searching for answers when you’re struggling with unexplained symptoms can be a long road with many turns along the way. See how others navigated their journey.
Journey to Diagnosis
Everyone’s journey is different. Watch as patients share their unique personal experiences, from the first signs that something wasn’t right to being diagnosed with HCM.
Patients were compensated for their time in the creation of these videos.
Heart Health Advocacy Groups
In addition to talking to your doctor, you can visit the websites of these advocacy groups for more information about HCM:
Focused on providing support, advocacy, and education to patients, families, and the medical community on HCM while supporting research and fostering the development of treatments. www.4hcm.org
Focused on inspiring hope and improving the quality of life of heart patients and their families through peer-to-peer support, education, and advocacy. www.mendedhearts.org
Focused on improving the health and quality of life of women living with or at risk of heart disease and advocating for their benefit. www.womenheart.org/find-support
A program sponsored by the Heart Rhythm Society (HRS), connecting patients, caregivers, and healthcare providers to form a unified team. www.upbeat.org
This website is best viewed using the horizontal display on your tablet device.
This website is best viewed using the vertical display on your mobile device.
