HCM Resources

Whether you’re looking to understand more about your symptoms or you’ve been recently diagnosed with HCM, here are resources to help you learn more about HCM.

Woman holding a gardening bag struggling to walk while being held back by a list of hypertrophic cardiomyopathy (HCM) symptoms

Whether you’re looking to understand more about your symptoms or you’ve been recently diagnosed with HCM, here are resources to help you learn more about HCM.

Sign up for more information

CALL 1-866-4HCM-INFO
(866-442-6463) 8 AM to 8 PM, ET,
Monday-Friday

Sign up to receive educational information, doctor discussion tips, and symptom-tracking support tools. You’ll also discover organizations and associations that may be able to provide you with even more helpful information.

HCM Resource Hub

The resources in the HCM hub are available to help you have an informed discussion about HCM with a doctor. You can use the interactive guide online or download a guide that you can customize when you print it.

Doctor Discussion Guide

Learn what questions to ask to help you get the answers you’re looking for.

Symptom Guide

Use this list to help monitor your symptoms and bring it with you to your next doctor appointment.

Family Tree Guide

Identify potential indicators for HCM and if anyone in your family has been affected by them.

Informative Videos

This is HCM

HCM can affect anyone at any age and everyone’s experience with HCM is different. Learn more about the condition in this short video.

Watch the video to learn more about HCM and what happens in the body when a person has HCM.

Watch Video
Video about hypertrophic cardiomyopathy (HCM) and what happens in the body when a person has HCM

Family History

Dr. Michael Ackerman, a cardiologist and geneticist, explains the importance of knowing your family’s heart health history. Once you watch the video, you can record your family’s information using the interactive Family Tree Guide here.

Learn why it’s important to know your family’s heart health history.

Watch Video

Dr. Ackerman was compensated for his time in the creation of this video.

Video of Dr. Michael Ackerman talking about hypertrophic cardiomyopathy (HCM) and family heart health history

Dr. Ackerman was compensated for his time in the creation of this video.

Real Patients

Searching for answers when you’re struggling with unexplained symptoms can be a long road with many turns along the way. See how others navigated their journey.

Watch as patients share their unique personal experiences, from the first signs that something wasn’t right to being diagnosed with HCM.

Watch Video

Preston was compensated for his time in the creation of this
video.

Video of Preston sharing his hypertrophic cardiomyopathy (HCM) patient story

Preston was compensated for his time in the creation of this video.

Patients tell how they became more aware, educated, and empowered with a correct diagnosis.

Watch Video

Kristen was compensated for her time in the creation of this video.

Video of patients sharing their hypertrophic cardiomyopathy (HCM) patient stories

Kristen was compensated for her time in the creation of this video.

Heart Health Advocacy Groups

In addition to talking to your doctor, you can visit the websites of these advocacy groups for more information about HCM:

American Heart Association

The American Heart Association is a relentless force for a world of longer, healthier lives for all. www.heart.org/en/health-topics/cardiomyopathy/what-is-cardiomyopathy-in-adults/hypertrophic-cardiomyopathy

Hypertrophic Cardiomyopathy Association (HCMA)

Focused on providing support, advocacy, and education to patients, families, and the medical community on HCM while supporting research and fostering the development of treatments. www.4hcm.org

The Mended Hearts, Inc.

Focused on inspiring hope and improving the quality of life of heart patients and their families through peer-to-peer support, education, and advocacy. www.mendedhearts.org

WomenHeart

Focused on improving the health and quality of life of women living with or at risk of heart disease and advocating for their benefit.
www.womenheart.org/find-support

UpBeat

A program sponsored by the Heart Rhythm Society (HRS), connecting patients, caregivers, and healthcare providers to form a unified team. www.upbeat.org

Clinical Trials for HCM

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CV-US-2300625 12/23