HCM Resources

Whether you’re looking to understand more about your symptoms or you’ve been recently diagnosed with HCM, here are resources to help you learn more about HCM.

woman struggling with hypertrophic cardiomyopathy (HCM)

Whether you’re looking to understand more about your symptoms or you’ve been recently diagnosed with HCM, here are resources to help you learn more about HCM.

Sign up for more information

Helpful Information

Get educational information, doctor discussion tips, and symptom-tracking support tools.

Support and Advocacy Groups

Discover organizations and associations that may be able to provide you with even more helpful information.

To sign up for additional
information about HCM:

CALL 1-866-4HCM-INFO
(866-442-6463) 8 AM to 8 PM, ET, Monday-Friday

Tools and Videos

Making an appointment to see your doctor?

Use these tools to help you have an informed discussion. You can create a customized guide online or download a guide that
you can customize when you print it.

Doctor Discussion Guide

Learn what questions to ask to help you
get the answers you’re looking for.

Create Your Own Guide

OR

Download a Guide (English) Download a Guide (Spanish)
Symptom Guide

Use this list to help monitor your symptoms and bring it with you to your next doctor appointment.

Create Your Own Guide

OR

Download a Guide (English) Download a Guide (Spanish)

See what happens inside the heart when a person has HCM.

Watch Video
click to learn more about hypertrophic cardiomyopathy (HCM)

Real Patients

Searching for answers when you’re struggling with unexplained symptoms can be a long road with many turns along the way. See how others navigated their journey.

Journey to Diagnosis

Everyone’s journey is different. Watch as patients share their unique personal experiences, from the first signs that something wasn’t right to being diagnosed with HCM.

Patients were compensated for their time in the creation of these videos.

Heart Health Advocacy Groups

In addition to talking to your doctor, you can visit the websites of these advocacy groups for more information about HCM:

Hypertrophic Cardiomyopathy Association (HCMA)

Focused on providing support, advocacy, and education to patients, families, and the medical community on HCM while supporting research and fostering the development of treatments. www.4hcm.org

The Mended Hearts, Inc.

Focused on inspiring hope and improving the quality of life of heart patients and their families through peer-to-peer support, education, and advocacy. www.mendedhearts.org

WomenHeart

Focused on improving the health and quality of life of women living with or at risk of heart disease and advocating for their benefit. www.womenheart.org/find-support

UpBeat

A program sponsored by the Heart Rhythm Society (HRS), connecting patients, caregivers, and healthcare providers to form a unified team. www.upbeat.org

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